tag:blogger.com,1999:blog-18010424.post7468962960018358694..comments2024-03-27T11:54:49.403-04:00Comments on I Just Finished Reading...: ALS, music, and hopeJennifer B.http://www.blogger.com/profile/14499251230157627049noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-18010424.post-8829472698587576472011-01-29T04:10:35.795-05:002011-01-29T04:10:35.795-05:00Lori, sorry to hear about your family. I work for...Lori, sorry to hear about your family. I work for a non-profit group, The Young Faces of ALS (YFALS). Our goal is to raise awareness that ALS is not an 'older peoples' disease- young people get it and young people- your nieces- are affected by it. We welcome anyone but your nieces may want to join to look for support during this journey.<br /><br />We are planning a Corn Hole event in many US cities on June 18, 2011.we welcome all! Our fund raising efforts support ALS-TDI, a non-profit ALS research lab in Cambridge. Please join our Facebook page and/or contact me at Francine@wag.com for more information. Thank you and prayers to your family.Anonymoushttp://Www.Facebook.com/YoungFacesofALSnoreply@blogger.comtag:blogger.com,1999:blog-18010424.post-885799715689528792011-01-17T01:20:26.800-05:002011-01-17T01:20:26.800-05:00What terrible news for your family Lori. Best wis...What terrible news for your family Lori. Best wishes for your fund raising and here's hoping that there'll be a miracle and/or breakthrough in time for your family.Kaetrinhttps://www.blogger.com/profile/16936055488367251592noreply@blogger.comtag:blogger.com,1999:blog-18010424.post-3819262444573980332011-01-16T15:17:04.338-05:002011-01-16T15:17:04.338-05:00Lori, my heart aches for your sister-in-law, her f...Lori, my heart aches for your sister-in-law, her family, and everyone else in her circle. I hope everyone finds the support they need and deserve. I commend you on being so diligent about keeping on top of the much needed research and funding for ALS and other diseases. You are truly an inspiration.Christinehttps://www.blogger.com/profile/00420773211895134710noreply@blogger.comtag:blogger.com,1999:blog-18010424.post-63452122775244579922011-01-12T23:48:45.092-05:002011-01-12T23:48:45.092-05:00Oh Lori, I'm so sad to hear about your sister ...Oh Lori, I'm so sad to hear about your sister in law. My prayers are with your family.Kristie (J)https://www.blogger.com/profile/15743921647882733738noreply@blogger.comtag:blogger.com,1999:blog-18010424.post-17047777430472385532011-01-10T11:32:10.259-05:002011-01-10T11:32:10.259-05:00Thanks, you guys. Your support means so much to me...Thanks, you guys. Your support means so much to me and my family. <br /><br />For those of you who chose to get the CD, I really hope you enjoy it!Lorihttps://www.blogger.com/profile/08250972350798310498noreply@blogger.comtag:blogger.com,1999:blog-18010424.post-40000764410993219952011-01-08T15:13:47.185-05:002011-01-08T15:13:47.185-05:00Oh Lori, I can't tell you how sorry I am to he...Oh Lori, I can't tell you how sorry I am to hear this news about your sister in law and your brother's family. It hurts. My prayers and best wishes for all of them. <br /><br />I purchased the CD through iTunes. Thank you for making us aware.Hilciahttps://www.blogger.com/profile/17765831808358693421noreply@blogger.comtag:blogger.com,1999:blog-18010424.post-65950520088932594752011-01-07T19:07:25.574-05:002011-01-07T19:07:25.574-05:00I am so very sorry to hear about your sister in la...I am so very sorry to hear about your sister in law. Thank you for sharing your story with us. My thoughts and good wishes are with you and your family.<br /><br />Thank you for bringing ALS to our attention and giving us opportunities to help.Collettehttps://www.blogger.com/profile/11118664654134825732noreply@blogger.comtag:blogger.com,1999:blog-18010424.post-34358697446663637332011-01-07T16:28:17.954-05:002011-01-07T16:28:17.954-05:00There really are no adequate words, but please kno...There really are no adequate words, but please know that many good wishes and prayers are being sent your way. I will think of you all, looking for ways to support ALS causes. The CD is a good place to start. Let us know about your walk, too.Phylhttps://www.blogger.com/profile/14665665401551658932noreply@blogger.comtag:blogger.com,1999:blog-18010424.post-43196572953118370142011-01-07T15:10:44.970-05:002011-01-07T15:10:44.970-05:00It always hurts my heart to see posts like this, e...It always hurts my heart to see posts like this, especially when it concerns people that I hold close to my heart. I will be buying that C by Peter Gusmano, it's not much but I'm glad that 100% of the proceeds will be going toward Project ALS.<br /><br />My thoughts and prayers are with you and your family. I hope that they find a way to get your niece to BU or a better solution that suits them all.<br /><br />Big hugs sweetie!Rowenahttps://www.blogger.com/profile/15472559027348735571noreply@blogger.com